Saturday, we drove to Fish Town by the Delaware River for Shad Fest. We enjoyed some music, food and time to play at the park. Then it was off to Smith Playhouse for some more play time. This play house was built in the 1890's in memory of a couple's son. It has several rooms filled with toys and a large outdoor playground as well. My favorite part was the large wooden slide. I went down it a couple times with Mommy and a few more with Daddy.
Sunday we went to The Philadelphia Zoo. It was really hot, almost 90 degrees!! We got to see tons of animals and Daddy took me on the carousel. This was my first carousel ride. It's hard to tell but I did enjoy it. We were very hot and tired by this point. I fell asleep in my stroller on our walk back to the car. When we got home, we played outside and made dinner. It was really nice to spend some time with my family. I hope we can go back soon.
I also wanted to share a picture of me with my Grandpa Larson at Easter time.
I want to remind all my friends and family that you still have time to donate to Great Strides, just click on the picture at the bottom of the page. You also still have time to send it in the mail to my parents if you don't want to donate online. If you use Paypal and want to donate that way, you can send the donation to Daddy's email at poorbackslider@gmail.com and we will turn in the donation the day of the walk.
Just to tell you what your donations are doing, my parents attended a CF conference where they learned about two new medications that are in adult phase trials right now. One medication, called VX770, is a pill you take twice a day. This med could eliminate most of what I do today. It's not a cure but very close. Of course more research is needed but it is looking very promising. Your donations could get this drug to market faster.
Here are a few pics of me after one of my treatments, they can really wear me out.
Take care everyone,
Luke William
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